Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand. - Isaiah 41:10, ESV
Our vision is that those impacted by rare diseases or special conditions will be strengthened in their relationship with Jesus Christ and demonstrate their deep and abiding rare faith to others.
Our Vision
Our Mission
The Center for Faith and Rare Disease equips patients, caregivers, churches, and ministry leaders with Biblical counseling, practical resources, and Christ-centered community so no one walks the rare disease journey alone.
Our Programs
At CFRD, we dedicate ourselves to delivering unparalleled support and resources to those in need and transforming lives with every effort. Join us as we craft a brighter future, blending compassion with excellence to create enduring change.
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Collaborate with churches to identify needs for Biblical Counseling for patients and families with rare diseases and special conditions
Provide funding to partner churches for individuals / families to receive church based Biblical Counseling for 1 year
Provide funding to partner churches for individuals who want to be trained to become ACBC certified or complete certificate programs through CCEF
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Develop content based on best practices: Achieving Excellence in Special Needs Ministry
Develop the A Rare Faith™ curriculum specific to training church leaders / lay leaders on the specific needs and opportunities to minister to individuals with rare diseases and conditions
Develop resources specific to the Rare Disease and Special Needs communities emphasizing the role of faith and available support resources (books, websites, blogs, channels, articles, church finder)
Develop an annual, national conference that educates and equips faith leaders
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Sponsor fundraising opportunities that support a network of patients and caregivers getting together, networking and building their faith together
Exhibit at National Conferences and identify opportunities for keynote presentations, break-out sessions: Achieving Excellence in Special Needs Ministry, The role of Faith in serving Patients and Caregivers with Rare Diseases and Conditions
Develop an annual, national conference that educates industry advocacy teams & other non-profit advocacy organizations
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Develop resources for theology students / medical researchers / fellows to study and publish the intersection of faith and rare disease patient / caregiver journeys
Develop new resources specific to the Rare Disease and Special Needs community emphasizing the role of faith
Become a part of our community
Interested in learning more? Fill out some info and we will be in touch shortly. We can’t wait to hear from you!
Rett Syndrome, Angelman Syndrome, NF1, NF2, Cystic Fibrosis, Downs Syndrome, EDS, Duchenne Muscular Dystrophy, Huntington's Disease, Wilson's Disease, Fabry Disease, IPF, MSA, SMA, Gaucher Disease, Thalassemia & Sickle Cell, MDS, Alexander Disease, Hemophilia, Tuberous Sclerosis Complex, Achondroplasia, Pompe Disease, Primary ciliary dyskinesia, Hereditary angioedema, Fragile X, Autism
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Rett Syndrome, Angelman Syndrome, NF1, NF2, Cystic Fibrosis, Downs Syndrome, EDS, Duchenne Muscular Dystrophy, Huntington's Disease, Wilson's Disease, Fabry Disease, IPF, MSA, SMA, Gaucher Disease, Thalassemia & Sickle Cell, MDS, Alexander Disease, Hemophilia, Tuberous Sclerosis Complex, Achondroplasia, Pompe Disease, Primary ciliary dyskinesia, Hereditary angioedema, Fragile X, Autism ~